Aleigha's dad sent me an update from last November till now of Aleigha's story.
In November 07 Aleigha relapsed. Her Drs. told us that this time the cancer would take her. That hit us hard, but Aleigha she looked at her Dr. and told him he didnt know what he was talking about, and preceded to tell him she would beat it this time too. Aleigha was put on an experimental clinical trial in Nov. 07. She goes to Riley ever 21 days for one day to start each round of chemo. She has 3 chemo meds to take. The first one is only on the first day. She gets that thru her PIC line and then the other are for 5 days and they are oral chemos. Day one is at Riley and days 2 thru 5 are at home. She cant stand the taste of them but takes them anyway. Then once a week we go to Lutheran Hospital here in Fort Wayne for lab work and check ups.
It was very hard to hear that the cancer would eventually take her. We had long talks and decided to live with no regrets. That is to do what ever Aleigha wants to do. That way we never have the regrets of not doing something. We also let everyone know that Aleigha was in charge and we will fight this with her as long as she is able.
The scans started to show small shrinkage in each of the three hot spots. Then in June the scans stayed the same no changes. That was good that they stopped growing and are now stable. In August 08 we went to teh PPB family get together and conference in Bloomington Minnesota and met other PPB families and the top Drs. in the study and treatment of PPB. Aleigha is patient 203 in the world and now there are only 254 cases in the world. We learned both good and bad news, and made connections with the other families and we keep in touch with them. The bad news that we leaarned was that no one with stage 3 PPB has survived after relapsing. We learned that our Drs. are doing an awesome job, and we believe Aleigha will survive this and pave the way for others to beat it too. The trial we are on ends in November 08. We will discuss with her Drs. what the next best coarse will be and continue on that path.
Aleigha has been just amazing through all of this and has maintained a positive strong attitude that she will win. Aleigha is our Hero and has many followers on her web-site that encourage her and the rest of the family to fight on. Thanks go out to God, Aleighas Power of Pink, and all thoughs who pray for her.
Daddy of the Pink Princess
I'll leave you with that and this final image from my photo shoot with Aleigha. I just had her look out the window, but the way she's looking up in this one almost looks like she's having her own conversation with God while I'm snapping away. I love it.
For those of you who are following this blog and Aleigha's story, I encourage you to keep visiting her site and leave her a message of encouragement now and then. After meeting this little girl, I know if anyone can beat this, she will :)
In November 07 Aleigha relapsed. Her Drs. told us that this time the cancer would take her. That hit us hard, but Aleigha she looked at her Dr. and told him he didnt know what he was talking about, and preceded to tell him she would beat it this time too. Aleigha was put on an experimental clinical trial in Nov. 07. She goes to Riley ever 21 days for one day to start each round of chemo. She has 3 chemo meds to take. The first one is only on the first day. She gets that thru her PIC line and then the other are for 5 days and they are oral chemos. Day one is at Riley and days 2 thru 5 are at home. She cant stand the taste of them but takes them anyway. Then once a week we go to Lutheran Hospital here in Fort Wayne for lab work and check ups.
It was very hard to hear that the cancer would eventually take her. We had long talks and decided to live with no regrets. That is to do what ever Aleigha wants to do. That way we never have the regrets of not doing something. We also let everyone know that Aleigha was in charge and we will fight this with her as long as she is able.
The scans started to show small shrinkage in each of the three hot spots. Then in June the scans stayed the same no changes. That was good that they stopped growing and are now stable. In August 08 we went to teh PPB family get together and conference in Bloomington Minnesota and met other PPB families and the top Drs. in the study and treatment of PPB. Aleigha is patient 203 in the world and now there are only 254 cases in the world. We learned both good and bad news, and made connections with the other families and we keep in touch with them. The bad news that we leaarned was that no one with stage 3 PPB has survived after relapsing. We learned that our Drs. are doing an awesome job, and we believe Aleigha will survive this and pave the way for others to beat it too. The trial we are on ends in November 08. We will discuss with her Drs. what the next best coarse will be and continue on that path.
Aleigha has been just amazing through all of this and has maintained a positive strong attitude that she will win. Aleigha is our Hero and has many followers on her web-site that encourage her and the rest of the family to fight on. Thanks go out to God, Aleighas Power of Pink, and all thoughs who pray for her.
Daddy of the Pink Princess
I'll leave you with that and this final image from my photo shoot with Aleigha. I just had her look out the window, but the way she's looking up in this one almost looks like she's having her own conversation with God while I'm snapping away. I love it.
For those of you who are following this blog and Aleigha's story, I encourage you to keep visiting her site and leave her a message of encouragement now and then. After meeting this little girl, I know if anyone can beat this, she will :)
This can either go in the senior book or be ordered as a 10x10 or 6x6 print or canvas :)
If you remember I did a littlest heroes shoot recently for a beautiful little princess named Aleigha. You can read her original story HERE and the rest of it HERE .
I got news recently that Aleigha is considered NED which stands for No Evidence of Disease. She has had her last chemo treatment. Please keep her in your prayers that this is IT and she'll never have to battle with that horrible disease again:)
You can leave well wishes for Aleigha at http://www.caringbridge.org/visit/aleighasweet.
I got news recently that Aleigha is considered NED which stands for No Evidence of Disease. She has had her last chemo treatment. Please keep her in your prayers that this is IT and she'll never have to battle with that horrible disease again:)
You can leave well wishes for Aleigha at http://www.caringbridge.org/visit/aleighasweet.
I did a quick holiday card session for my SIL this morning. Thought I'd share one of my faves :)
For those of you who didn't get a card, this is what we sent out this year! It was a 5x5 Trifold card. I have it labled on here which picture was where. Just picture the middle of the top card as the back and the "front" is folded over the top and the instead flap is folded in under it. Then when you open the card all the way, the "Inside spread" is what you see.
click on the images to make them larger:)
click on the images to make them larger:)
Ok, so I didn't make cards for the baby, and HE picked out what he was wearing for the pics. lol. He just saw big bub and sis getting pics done and he needed some too.
He loves his boots and his hat. Wears them around the house like this often!
this was after watching Hunter lay on his stomach. Too funny. He's such a clown.
And here are the cards we are doing. The reason there is selective focus on their hands like that is because we are going to cut a little slit at the top and bottom of their hands and insert a sucker so it will be like they are handing a sucker out of their cards... These will be made on 4x6 linen postcards. The backsides have the same pattern as the design on the front and just a TO: and FROM: line with their names and then my photography info at the bottom.
Click the photos to see larger.
He loves his boots and his hat. Wears them around the house like this often!
this was after watching Hunter lay on his stomach. Too funny. He's such a clown.
And here are the cards we are doing. The reason there is selective focus on their hands like that is because we are going to cut a little slit at the top and bottom of their hands and insert a sucker so it will be like they are handing a sucker out of their cards... These will be made on 4x6 linen postcards. The backsides have the same pattern as the design on the front and just a TO: and FROM: line with their names and then my photography info at the bottom.
Click the photos to see larger.
Was a beautiful day yesterday, so I had to drag one of the kiddies out to play with my new camera! He was just as excited to be outside as I was, and NOT in the mood to sit for photos.
Love this one though:)
